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Showing posts with label Myriad Genetics. Show all posts
Showing posts with label Myriad Genetics. Show all posts

Saturday, January 21, 2012

Half Way There.



This last week our team hit the half way mark for our fundraising goal of $12,000.  All of this momentum has mostly happened within the last month. Prior to this month, I think our team raised around $1,700 over a 2-3 month period.  We really saw a shift in the fundraising this last month.  I think most of this momentum can be contributed to one aspect that is unique to running a Ragnar relay.
At the beginning of January, our team decided that we would give preference for route selection based on who had completed the most fundraising.  A Ragnar race can be very different for each individual runner depending on what position they run in.  Some runners will have lots of uphill, some lots of downhill.  Only half of each team needs to be at the actual start line.  Most people will have some kind of preference for what leg they want to run.  We made one caveat, any of the cancer survivors or previvors would get to pick before any of the employees. Most of the survivors and previvors are flying in from sea level and won’t be used to the higher elevation here in Utah.  This is one of the great things about using a Ragnar relay event as a charity fundraiser.  The dynamics of the event allow you to create a pretty effective motivational tool to inspire people to raise funds.  It also allows you to create a milestone before the final fundraising deadline, which helps motivate people to donate sooner.
We’ve had some truly remarkable fundraisers in our group.  Multiple people have met the $500 minimum or, come close to it, in less than 24 hours time.  These individuals have a very supportive family and friend network and are able to garner support with a simple email.  They are a great asset to the team and we are glad to have them aboard.
Members of Huntsman Hometown Heroes (HHH) are really starting to take notice of our group.  Our team has currently raised $7,251 as of today.  This puts us as one of the top, if not the top, fundraising teams at the moment for HHH.  There is still a lot of time left before the final deadline and we still have quite a bit of money to raise.  Our team still has quite a few more ideas to try out, so stay tuned.  
We have a very special team working together.  If you’d like to make a contribution and help us out, you can visit http://ragnarrelay.kintera.org/collincburton and make a donation. Thanks for reading.

Wednesday, January 18, 2012

I Run Because I Live

Jodi Vargas is one of our team members and is a previvor of cancer.  She wanted to share her story below.  Read her story below and then make a donation at http://bit.ly/yZjEXK

I Run Because I Live…
If you’ve read the “our Background” post from January 14, you are aware of the intent of Myriad employees running in part to spend time interacting with their “customers.” I read that, too, and wondered exactly who they were referring to. Turns out, I am one of those customers. The thing is…I don’t feel like a customer at all. I am a patient, a “previvor” (Google it), an advocate. I am one of the people whose life has been changed forever by the kind of research we are raising money and awareness to support.
My name is Jodi Vargas. I’m probably better known, though as Henry’s Mom. My son Henry is 19 now, and still, my favorite thing to be called is Henry’s Mom.
HENRY
Henry’s dad, my husband Alan, died when Henry was only 7 years old. He became ill when I was pregnant with Henry, so Henry only ever knew a sick dad.
JODI, HENRY & ALAN 1995
I was only thirty when I became a widow.
Five years later, my own mother died of ovarian cancer after an eight year horrific battle with that terrible disease.
MY MOM, DIANE 1973
I began asking my doctor about testing even before my mother died. I had witnessed first-hand how deadly ovarian cancer could be, and I was terrified of leaving Henry. I could not bear the thought of putting him through another parent with a long illness – or worse – the death of his only remaining parent. My doctor assured me, however, that I didn’t need to worry about being tested. She said that the tests were generally unreliable, and that since I was only in my early 30’s, I had plenty of time to live without the worry of breast and ovarian cancer. I trusted my doctor, yet each visit to her, I asked about testing again. Over and over, she reassured me that I didn’t need to worry so much.
I tried not to worry. My life was moving forward in amazing ways. In July 2007, I married my husband, Jason, in Hawaii. Henry gave me away at our wedding.

HENRY, JODI & JASON
JULY 2007
Late November 2008 I went to see a family practice doctor because I was having severe allergies. As I was waiting in the exam room for the doctor, I noticed a poster on her wall about BRCA testing. I asked if I could have the test, and without much discussion, my blood was drawn. I got the call on December 12, 2008, two days before my 39th birthday. I have the BRCA1 mutation, which made me very likely to get breast and ovarian cancer.
I had my BSO and hysterectomy on January 20, and my prophylactic bilateral mastectomy on April 2 of 2009.
Losing both my first husband and my mother after long illnesses has taught me many things. The most important of those is to never take time for granted.
I am proof that being tested made a difference. I get to continue to be Henry’s Mom for a very long time.
PLEASE CONSIDER HELPING US RAISE AWARENESS AND FUNDS FOR MORE RESEARCH. IT LITERALLY SAVED MY LIFE!


To make a donation to the Huntsman Cancer Foundation and help support Jodi and her vision to find a cure for cancer, visit : http://bit.ly/yZjEXK